Narcolepsy Network Inc., announced to its members today that Abbott Laboratories will cease production of Cylert, a medication used by an estimated 10,000 Americans afflicted with the sleep disorders of narcolepsy and idiopathic hypersomnia. In an untreated state, both of these disorders are characterized by excessive sleepiness and sleep attacks during the day. At the same time, Public Citizen's Health Research Group, on behalf of individuals with ADHD, has petitioned the FDA to ban Cylert and its generic equivalent, Pemoline, due to risks associated with this medication.
Cylert (generic name "pemoline") has been the most effective treatment for Teresa's narcolepsy in 24 years since she was first diagnosed. She's been taking it for most of that time. Now it's gone. We discovered this when we tried to refill her standard prescription, just before Christmas, and the pharmacy didn't have any—and, after some confusion, reported back that the wholesaler didn't have any either, because (surprise!) it's no longer being made. Cylert has been implicated in some people's liver problems. Teresa is regularly tested and her liver is fine. Evidently Abbott, makers of brand-name Cylert, discontinued it in March—but Sandoz intended to keep making the generic version, until the FDA, pressured by Nader’s group, weighed in to discontinue it entirely—despite a last-minute appeal from the Narcolepsy Network. Thank you, Public Citizen, for completely shafting my wife.
Disclaimer The opinions expressed herein are my own personal opinions and do not represent my employer's view in anyway.